{"id":21799,"date":"2026-10-08T20:55:55","date_gmt":"2026-10-08T13:55:55","guid":{"rendered":"https:\/\/useful.vn\/?p=21799"},"modified":"2026-10-08T20:55:55","modified_gmt":"2026-10-08T13:55:55","slug":"cuu-song-be-so-sinh-mac-benh-vay-ca-hiem-gap-bi-lon-mi-mat","status":"publish","type":"post","link":"https:\/\/useful.vn\/?p=21799","title":{"rendered":"C\u1ee9u s\u1ed1ng b\u00e9 s\u01a1 sinh m\u1eafc b\u1ec7nh v\u1ea3y c\u00e1 hi\u1ebfm g\u1eb7p, b\u1ecb l\u1ed9n mi m\u1eaft"},"content":{"rendered":"
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\n M\u1ed9t b\u00e9 trai sinh non m\u1eafc b\u1ec7nh v\u1ea3y c\u00e1 d\u1ea1ng phi\u1ebfn (Lamellar Ichthyosis) v\u00f4 c\u00f9ng hi\u1ebfm g\u1eb7p v\u1eeba \u0111\u01b0\u1ee3c \u0111i\u1ec1u tr\u1ecb th\u00e0nh c\u00f4ng. <\/strong><\/h2>\n

Th\u00f4ng tin t\u1eeb m\u1ed9t b\u1ec7nh vi\u1ec7n t\u1ea1i TP.HCM chi\u1ec1u 25\/9, sau 12 ng\u00e0y \u0111\u01b0\u1ee3c ch\u0103m s\u00f3c v\u00e0 \u0111i\u1ec1u tr\u1ecb t\u00edch c\u1ef1c, s\u1ee9c kh\u1ecfe c\u1ee7a b\u1ec7nh nhi \u0111\u00e3 \u1ed5n \u0111\u1ecbnh, t\u00ecnh tr\u1ea1ng t\u1ed5n th\u01b0\u01a1ng da ph\u1ee5c h\u1ed3i t\u1ed1t v\u00e0 ch\u00ednh th\u1ee9c \u0111\u01b0\u1ee3c xu\u1ea5t vi\u1ec7n.<\/p>\n

Tr\u01b0\u1edbc \u0111\u00f3, v\u00e0o ng\u00e0y 6\/9, s\u1ea3n ph\u1ee5 T.T.H.N (sinh n\u0103m 1981) nh\u1eadp vi\u1ec7n khi thai k\u1ef3 \u1edf tu\u1ea7n th\u1ee9 35 v\u00e0 2 ng\u00e0y trong t\u00ecnh tr\u1ea1ng v\u1ee1 \u1ed1i, thai ng\u00f4i ngang. C\u00e1c b\u00e1c s\u0129 \u0111\u00e3 nhanh ch\u00f3ng ch\u1ec9 \u0111\u1ecbnh ph\u1eabu thu\u1eadt m\u1ed5 l\u1ea5y thai, th\u00e0nh c\u00f4ng \u0111\u00f3n b\u00e9 trai n\u1eb7ng 3,1kg ch\u00e0o \u0111\u1eddi.<\/p>\n

Tuy nhi\u00ean, ni\u1ec1m vui c\u1ee7a gia \u0111\u00ecnh nhanh ch\u00f3ng nh\u01b0\u1eddng ch\u1ed7 cho s\u1ef1 lo l\u1eafng khi b\u00e9 xu\u1ea5t hi\u1ec7n nhi\u1ec1u bi\u1ec3u hi\u1ec7n b\u1ea5t th\u01b0\u1eddng ngay sau sinh nh\u01b0 suy h\u00f4 h\u1ea5p, l\u00e0n da kh\u00f4 c\u0103ng b\u00f3ng v\u00e0 n\u1ee9t n\u1ebb. B\u1ec7nh nhi c\u00f2n b\u1ecb l\u1ed9n mi m\u1eaft v\u00e0 c\u0103ng k\u00e9o v\u00f9ng m\u00f4i khi\u1ebfn vi\u1ec7c b\u00fa s\u1eefa g\u1eb7p r\u1ea5t nhi\u1ec1u kh\u00f3 kh\u0103n.<\/p>\n

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\"C\u1ee9u<\/span><\/div>\n<\/figure>\n
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\"B\u00e9<\/span><\/div>\n<\/figure>\n<\/div>\n<\/section>\n<\/div>\n

B\u00e9 s\u01a1 sinh m\u1eafc b\u1ec7nh v\u1ea3y c\u00e1 d\u1ea1ng phi\u1ebfn (Lamellar Ichthyosis) hi\u1ebfm g\u1eb7p. \u1ea2nh: BVCC<\/p>\n

Chia s\u1ebb v\u1ec1 kho\u1ea3nh kh\u1eafc \u0111\u1ea7u ti\u00ean nh\u00ecn th\u1ea5y con, ch\u1ecb H.N cho bi\u1ebft b\u1ea3n th\u00e2n \u0111\u00e3 v\u00f4 c\u00f9ng hoang mang v\u00e0 ch\u1ec9 bi\u1ebft kh\u00f3c khi th\u1ea5y da, m\u1eaft v\u00e0 m\u00f4i c\u1ee7a b\u00e9 kh\u00e1c bi\u1ec7t ho\u00e0n to\u00e0n so v\u1edbi nh\u1eefng \u0111\u1ee9a tr\u1ebb b\u00ecnh th\u01b0\u1eddng. Ngay sau khi \u0111\u01b0\u1ee3c th\u1ef1c hi\u1ec7n ph\u01b0\u01a1ng ph\u00e1p da k\u1ec1 da c\u00f9ng m\u1eb9, b\u00e9 l\u1eadp t\u1ee9c \u0111\u01b0\u1ee3c chuy\u1ec3n \u0111\u1ebfn Khoa B\u1ec7nh l\u00fd S\u01a1 sinh \u0111\u1ec3 theo d\u00f5i. T\u1ea1i \u0111\u00e2y, qua th\u0103m kh\u00e1m l\u00e2m s\u00e0ng, c\u00e1c b\u00e1c s\u0129 ch\u1ea9n \u0111o\u00e1n tr\u1ebb nghi ng\u1edd m\u1eafc b\u1ec7nh l\u00fd v\u1ea3y c\u00e1 b\u1ea9m sinh.<\/p>\n

Qu\u00e1 tr\u00ecnh \u0111i\u1ec1u tr\u1ecb \u0111\u00f2i h\u1ecfi s\u1ef1 theo d\u00f5i s\u00e1t sao, trong \u0111\u00f3 em b\u00e9 \u0111\u01b0\u1ee3c h\u1ed7 tr\u1ee3 th\u1edf b\u1eb1ng m\u00e1y nCPAP v\u00e0 ki\u1ec3m so\u00e1t ch\u1eb7t ch\u1ebd c\u00e1c ch\u1ec9 s\u1ed1 v\u1ec1 th\u00e2n nhi\u1ec7t, d\u1ecbch, \u0111i\u1ec7n gi\u1ea3i. \u0110\u1ed9i ng\u0169 y b\u00e1c s\u0129 \u0111\u00e3 ti\u1ebfn h\u00e0nh ch\u0103m s\u00f3c da t\u00edch c\u1ef1c b\u1eb1ng c\u00e1ch li\u00ean t\u1ee5c gi\u1eef \u1ea9m, b\u1ea3o v\u1ec7 h\u00e0ng r\u00e0o da nh\u1eb1m h\u1ea1n ch\u1ebf m\u1ea5t n\u01b0\u1edbc v\u00e0 ng\u0103n ng\u1eeba nguy c\u01a1 nhi\u1ec5m tr\u00f9ng.<\/p>\n

T\u00ecnh tr\u1ea1ng l\u1ed9n mi c\u1ee7a b\u00e9 c\u0169ng \u0111\u01b0\u1ee3c x\u1eed tr\u00ed c\u1ea9n th\u1eadn \u0111\u1ec3 b\u1ea3o v\u1ec7 th\u1ecb l\u1ef1c. Nh\u1edd ph\u00e1c \u0111\u1ed3 \u0111i\u1ec1u tr\u1ecb k\u1ecbp th\u1eddi, ch\u1ec9 sau m\u1ed9t tu\u1ea7n, h\u1ec7 h\u00f4 h\u1ea5p c\u1ee7a tr\u1ebb \u0111\u00e3 \u1ed5n \u0111\u1ecbnh, c\u00e1c t\u1ed5n th\u01b0\u01a1ng \u1edf v\u00f9ng m\u1eaft v\u00e0 da c\u00f3 d\u1ea5u hi\u1ec7u c\u1ea3i thi\u1ec7n r\u00f5 r\u1ec7t. \u0110\u1ebfn ng\u00e0y \u0111i\u1ec1u tr\u1ecb th\u1ee9 12, b\u1ec7nh nhi \u0111\u00e3 c\u00f3 th\u1ec3 b\u00fa s\u1eefa ho\u00e0n to\u00e0n, l\u00e0n da g\u1ea7n nh\u01b0 tr\u1edf l\u1ea1i tr\u1ea1ng th\u00e1i b\u00ecnh th\u01b0\u1eddng v\u00e0 \u0111\u01b0\u1ee3c c\u00e1c b\u00e1c s\u0129 cho ph\u00e9p xu\u1ea5t vi\u1ec7n v\u1ec1 nh\u00e0.<\/p>\n

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\"C\u1ee9u<\/span><\/div>\n<\/figure>\n
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\"Sau<\/span><\/div>\n<\/figure>\n<\/div>\n<\/section>\n<\/div>\n

Sau 12 ng\u00e0y \u0111i\u1ec1u tr\u1ecb, da b\u00e9 s\u01a1 sinh m\u1eafc b\u1ec7nh v\u1ea3y c\u00e1 d\u1ea1ng phi\u1ebfn \u0111\u00e3 \u0111\u01b0\u1ee3c xu\u1ea5t vi\u1ec7n. \u1ea2nh: BVCC<\/p>\n

Gi\u1ea3i th\u00edch v\u1ec1 c\u0103n b\u1ec7nh n\u00e0y, B\u00e1c s\u0129 chuy\u00ean khoa 2 Nguy\u1ec5n Tr\u1ea7n Th\u1ecb Huy\u1ec1n Dung, Ph\u00f3 Tr\u01b0\u1edfng khoa \u0111i\u1ec1u h\u00e0nh Khoa B\u1ec7nh l\u00fd S\u01a1 sinh c\u1ee7a B\u1ec7nh vi\u1ec7n Nh\u00e2n d\u00e2n Gia \u0110\u1ecbnh cho bi\u1ebft, v\u1ea3y c\u00e1 b\u1ea9m sinh (Ichthyosis) l\u00e0 nh\u00f3m b\u1ec7nh l\u00fd da di truy\u1ec1n c\u00f3 bi\u1ec3u hi\u1ec7n ngay t\u1eeb giai \u0111o\u1ea1n s\u01a1 sinh.<\/p>\n

Trong \u0111\u00f3, Lamellar Ichthyosis l\u00e0 m\u1ed9t th\u1ec3 b\u1ec7nh hi\u1ebfm g\u1eb7p, khi\u1ebfn da kh\u00f4, bong tr\u00f3c nh\u01b0 v\u1ea3y c\u00e1 ho\u1eb7c b\u1ecb bao ph\u1ee7 b\u1edfi m\u1ed9t l\u1edbp m\u00e0ng, k\u00e8m theo nguy c\u01a1 l\u1ed9n mi, l\u1ed9n m\u00f4i. B\u00e1c s\u0129 Dung nh\u1ea5n m\u1ea1nh r\u1eb1ng nh\u1eefng t\u1ed5n th\u01b0\u01a1ng \u1edf h\u00e0ng r\u00e0o b\u1ea3o v\u1ec7 da, \u0111\u1eb7c bi\u1ec7t l\u00e0 \u1edf tr\u1ebb sinh non, c\u00f3 th\u1ec3 d\u1eabn \u0111\u1ebfn c\u00e1c bi\u1ebfn ch\u1ee9ng nguy hi\u1ec3m nh\u01b0 m\u1ea5t n\u01b0\u1edbc, r\u1ed1i lo\u1ea1n th\u00e2n nhi\u1ec7t v\u00e0 nhi\u1ec5m tr\u00f9ng.<\/p>\n

Nh\u1eb1m b\u1ea3o v\u1ec7 s\u1ee9c kh\u1ecfe cho tr\u1ebb s\u01a1 sinh, b\u00e1c s\u0129 Dung khuy\u1ebfn c\u00e1o ph\u1ee5 huynh ngay khi ph\u00e1t hi\u1ec7n tr\u1ebb c\u00f3 c\u00e1c bi\u1ec3u hi\u1ec7n b\u1ea5t th\u01b0\u1eddng tr\u00ean da nh\u01b0 kh\u00f4 bong, c\u0103ng b\u00f3ng, n\u1ee9t n\u1ebb ho\u1eb7c \u0111\u1ed5i m\u00e0u, c\u1ea7n nhanh ch\u00f3ng \u0111\u01b0a \u0111\u1ebfn c\u01a1 s\u1edf y t\u1ebf \u0111\u1ec3 \u0111\u01b0\u1ee3c \u0111\u00e1nh gi\u00e1 ch\u00ednh x\u00e1c.<\/p>\n

Trong qu\u00e1 tr\u00ecnh ch\u0103m s\u00f3c sau xu\u1ea5t vi\u1ec7n, gia \u0111\u00ecnh c\u1ea7n tu\u00e2n th\u1ee7 h\u01b0\u1edbng d\u1eabn d\u01b0\u1ee1ng \u1ea9m da c\u1ee7a b\u00e1c s\u0129, tuy\u1ec7t \u0111\u1ed1i kh\u00f4ng \u0111\u01b0\u1ee3c t\u1ef1 \u00fd s\u1eed d\u1ee5ng c\u00e1c ph\u01b0\u01a1ng ph\u00e1p d\u00e2n gian hay c\u00e1c lo\u1ea1i thu\u1ed1c b\u00f4i ngo\u00e0i da ch\u1ee9a th\u00e0nh ph\u1ea7n corticosteroid khi ch\u01b0a c\u00f3 ch\u1ec9 \u0111\u1ecbnh t\u1eeb nh\u00e2n vi\u00ean y t\u1ebf. Vi\u1ec7c ph\u00e1t hi\u1ec7n s\u1edbm v\u00e0 can thi\u1ec7p \u0111\u00fang c\u00e1ch s\u1ebd gi\u00fap h\u1ea1n ch\u1ebf t\u1ed1i \u0111a c\u00e1c bi\u1ebfn ch\u1ee9ng nghi\u00eam tr\u1ecdng \u0111\u1ed1i v\u1edbi tr\u1ebb m\u1eafc b\u1ec7nh l\u00fd da b\u1ea9m sinh.<\/p>\n

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\"K\u1ef3<\/div>\n
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\n K\u1ef3 t\u00edch c\u1ee9u s\u1ed1ng b\u00e9 sinh non 750 gram, suy h\u00f4 h\u1ea5p, m\u1eafc b\u1ec7nh ph\u1ed5i m\u1ea1n t\u00ednh\n <\/div>\n
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B\u00e9 ch\u00e0o \u0111\u1eddi \u1edf tu\u1ea7n 24, ch\u1ec9 n\u1eb7ng 750 gram, m\u1eafc b\u1ec7nh ph\u1ed5i m\u1ea1n v\u00e0 nhi\u1ec1u l\u1ea7n xu\u1ea5t hi\u1ec7n c\u01a1n ng\u1eebng th\u1edf nh\u01b0ng \u0111\u00e3 \u0111\u01b0\u1ee3c c\u00e1c b\u00e1c s\u0129 B\u1ec7nh vi\u1ec7n Ph\u1ee5 s\u1ea3n H\u00e0 N\u1ed9i c\u1ee9u…<\/p>\n<\/div>\n

B\u1ea5m xem >>\n <\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/article>\n
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https:\/\/www.24h.com.vn\/suc-khoe\/cuu-song-be-so-sinh-mac-benh-vay-ca-hiem-gap-bi-lon-mi-mat-c62a1797722.html<\/p>\n

\u00a0<\/p>\n","protected":false},"excerpt":{"rendered":"

M\u1ed9t b\u00e9 trai sinh non m\u1eafc b\u1ec7nh v\u1ea3y c\u00e1 d\u1ea1ng phi\u1ebfn (Lamellar Ichthyosis) v\u00f4 c\u00f9ng hi\u1ebfm g\u1eb7p v\u1eeba \u0111\u01b0\u1ee3c \u0111i\u1ec1u tr\u1ecb th\u00e0nh c\u00f4ng. Th\u00f4ng tin t\u1eeb m\u1ed9t b\u1ec7nh vi\u1ec7n t\u1ea1i TP.HCM chi\u1ec1u 25\/9, sau 12 ng\u00e0y \u0111\u01b0\u1ee3c ch\u0103m s\u00f3c v\u00e0 \u0111i\u1ec1u tr\u1ecb t\u00edch c\u1ef1c, s\u1ee9c kh\u1ecfe c\u1ee7a b\u1ec7nh nhi \u0111\u00e3 \u1ed5n \u0111\u1ecbnh, t\u00ecnh tr\u1ea1ng t\u1ed5n<\/p>\n","protected":false},"author":1,"featured_media":21800,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[17],"tags":[],"class_list":["post-21799","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-suc-khoe"],"_links":{"self":[{"href":"https:\/\/useful.vn\/index.php?rest_route=\/wp\/v2\/posts\/21799","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/useful.vn\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/useful.vn\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/useful.vn\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/useful.vn\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=21799"}],"version-history":[{"count":0,"href":"https:\/\/useful.vn\/index.php?rest_route=\/wp\/v2\/posts\/21799\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/useful.vn\/index.php?rest_route=\/wp\/v2\/media\/21800"}],"wp:attachment":[{"href":"https:\/\/useful.vn\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=21799"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/useful.vn\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=21799"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/useful.vn\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=21799"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}